Funding and Support
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Thank you soo much❤️
This is what Laura and I can offer: Even though we haven't written the full brain cancer summary, we have provided a lot of links and resources there, on conventional care as well as complementary approaches. If you are interested in exploring what some people are doing in addition to conventional treatment (including clinical trials), check out the following, which are on our Brain Cancer summary:
--The Musella Foundation -- they list clinical trials (in More Information)
--If your friend has astrocytoma/glioblastoma, watch the video Surviving Terminal Cancer.
--Dwight McKee has a clinical pearl on glioblastoma and ketogenic diet
--We list several programs/protocols related to brain cancer on the summary.
If you want some help with navigation/advocacy, look at our summary on that in the Integrative Cancer Care section.
Finally, refer to the 7 Healing Practices and see if there are any that resonate with your friend.
Mary, please respond again and include your email address in your message so that we can correspond with you directly. We will not post your address publicly.
Hi! My name is Mary and I both attended the Webinar today (thank you!) and posted the question about contributing to/expanding your medicinal mushroom education and awareness on the website. My husband just completed an intense protocol for MCL at MSK (discovered incidentally). From the time it was diagnosed at a local upstate cancer center to the time we met with MSK, our casual knowledge of the immunomodulatory properties of medicinal mushrooms grew into an accelerated self study to gain more insight into this growing field. Through the assistance of Cornell mushroom growers (my affiliation), on line research, identifying the proper mushrooms for Lymphoma (MCL needs to down regulate Cyclin D1 which Turkey Tail does, along with aiding in the promotion of apoptosis of cancer cells, etc.) led us to proper suppliers who make correct dual hot water extractions to release the beta glucans. The two companies we found also readily supply COAs to assist with dosing. We've worked with MSK Integrative Medicine and were able to get an appointment a month into my husband's treatment (we started out on our own, advocating with the doctors for permission to take Turkey Tail extracts during treatment for assistance with the chemo side effects). So that's the initial story! Seeing that you have Agaricus blazei on the supplement list, it could be helpful to develop a stand alone section on mushrooms since so many different ones perform different functions. Mushroom coffees, teas are a huge fad although there is a company doing a great job of providing a dual extraction mushroom powder, for example, with an herbal vitamin c such as rose hips (which helps the beta glucan absorption). It's a great new field, Thanks, Mary
Thank you for your work. I have a friend who has been diagnosed with a brain tumor. He has had radiation and chemo but continues to have seizures. Was wondering if by any chance your brain report is available yet. Thank you.